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info_en [2022/08/12 10:30] – created lraithel | info_en [2022/09/01 18:05] (current) – added e-mail adress lraithel | ||
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- | ====== | + | ====== |
- | === Please read this carefully | + | |
+ | In our project, we aim to support the research of medication use from a patient’s perspective (as opposed to a doctor’s perspective). | ||
- | + | First of all, we would like to create a text collection (text corpus) from texts on social media, such as Twitter, with descriptions of how people use medicine(s) and what they experience when / after taking it. We are interested in dosages, improvement or aggravation of the patient' | |
- | Dear participant, | + | |
- | + | ||
- | in our project, we aim to support the research into medication use from a patient’s perspective (as opposed to a doctor’s perspective). | + | |
- | + | ||
- | We would like to create a text collection (text corpus) from texts on social media, such as Twitter, with descriptions of how people use medicine(s) and what they experience when / after taking it. We are interested in dosages, improvement or aggravation of the patient' | + | |
The resulting text corpus is subsequently de-identified, | The resulting text corpus is subsequently de-identified, | ||
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===== Data Privacy ===== | ===== Data Privacy ===== | ||
- | The description of a treatment and the associated drug reactions constitutes personal health information. For this reason, we are seeking your consent to include tweets you have authored in our research corpus. If you consent to the use of a tweet, this means that the text will be collected from the Twitter platform and included in an archive for dissemination to researchers in natural language processing and public health (for non-profit research purposes). You will not receive any compensation (financial or otherwise) for your participation. At any time, you can contact us via E-MAIL to change your decision regarding the inclusion of your text in the corpus. | + | The description of a treatment and the associated drug reactions constitutes personal health information. For this reason, we are seeking your consent to include tweets you have authored in our research corpus. If you consent to the use of a tweet, this means that the text will be collected from the Twitter platform and included in an archive for dissemination to researchers in natural language processing and public health (for non-profit research purposes). You will not receive any compensation (financial or otherwise) for your participation. At any time, you can contact us via this [[keepha-research@lisn.fr|e-mail address]] |
Thank you for your consideration. | Thank you for your consideration. | ||
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For confidentiality reasons, Twitter handles (usernames) will be removed from the texts, which will then be marked with mentions of drugs and adverse drug reactions and shared with the scientific community. The collected data and texts will be stored on institute-owned servers in Germany and France and will be only available within the research community upon signing a data protection agreement. | For confidentiality reasons, Twitter handles (usernames) will be removed from the texts, which will then be marked with mentions of drugs and adverse drug reactions and shared with the scientific community. The collected data and texts will be stored on institute-owned servers in Germany and France and will be only available within the research community upon signing a data protection agreement. | ||
- | The study is part of a joint project of the German Research Center for Artificial Intelligence (DFKI, | + | The study is part of a joint project of the German Research Center for Artificial Intelligence (DFKI, Berlin, Germany), the Nara Institute of Science Technology (NAIST, Nara, Japan) and the Interdisciplinary |
- | In case of any questions, please do not hesitate to send an e-mail | + | In case of any questions, please do not hesitate to send an e-mail (in either German, French or English). We are happy to respond. |
- | Responsible Data Controller: Aurélie Névéol, Lisa Raithel (E-MAIL) | + | Responsible Data Controllers: Aurélie Névéol, Lisa Raithel ([[keepha-research@lisn.fr|contact]]) |